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Patient Organisation Support 

Helping patient organisations engage effectively with regulators, payers and industry to improve access across Europe 

Empowering patient voices through access, insight, and collaboration.

At CSP, we believe that meaningful progress in healthcare depends on close partnership between patients, clinicians, and innovators. That’s why we dedicate part of our time and expertise to providing pro bono strategic support for patient organisations and rare disease charities working to improve access, awareness, and advocacy across Europe.

Our Commitment

CSP works with a small number of patient organisations each year on a no-fee basis, prioritising those addressing rare, ultra-rare, and high-unmet-need conditions. Our goal is to ensure that patient groups have access to the same level of insight and strategic thinking that supports industry stakeholders — creating a more balanced, informed, and collaborative healthcare ecosystems.

What We Offer 

Our pro bono support focuses on helping patient-led organisations strengthen their impact through strategic clarity, data insight, and engagement planning. Typical areas of support include:

Access Pathway Guidance 

Explaining how early access, compassionate use, and reimbursement systems operate across Europe.

Evidence and Data Planning 

Helping define real-world data needs and patient-reported outcomes to strengthen advocacy cases. 

Strategic communication 

Supporting clear and ethical dialogues with regulators, payers and manufacturers. 

Policy and Positioning Advice 

Helping organisations contribute effectively to policy consultation and HTS Processes.

Workshop and Training Sessions 

Building internal understanding of access pathways, pricing, and policy change.

Belmont Suite Paragon Business Park, 

Horwich,

Bolton, 

BL6 6HG

United Kingdom

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Company number: 16797603

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